Welcome to the Sweet Pea Project's Blog, part of the Sweet Pea Project's effort to create a supportive and compassionate community for those of us affected by the death of a child. Here you will find updates on the Sweet Pea Project, as well as anything going on in the world that relates to childloss. If you have a suggestion for a topic you would like to see discussed here, I'd love to hear it. Please make sure you stop by the official website, www.sweetpeaproject.org and feel free to email me for any reason at anytime at Stephanie@sweetpeaproject.org.
peace, Stephanie Cole (Madeline's Mom)

Sunday, September 26, 2010

Walk to Remember

Share of Lancaster asked me to be the speaker at their Annual Walk To Remember today. I was a little nervous about speaking at such an emotional event, but I was honored to have a chance to speak to other grieving parents about my experience and the ways in which I continue to parent my daughter by mothering her memory.

For those of you who were unable to attend, here is the speech:


I am here to speak to you today because I am one of you, a parent to a baby who is deeply loved and desperately missed. I wish I wasn't. I wish none of us were. I wish there was no reason to have an event like this, that the bench over there was just a nice place to sit, and that we were all gathered here today simply because it is a nice day and we wanted to play at the park with our children. In this daydream of mine I would be here playing with a pretty little three and a half year old girl. Pushing her on the swing. Watching her chase her little brothers around. I can almost see her there, with pigtails in her hair and summer freckles on her nose.

Madeline was my first child and is my only daughter. She was stillborn on January 5th, 2007, after 41 weeks of happy, healthy pregnancy. When I went past my due date we met with my doctor, who gave us the option of induction. After an exam, though, we decided against it. My bishop score was low, and the chance of complications arising during labor was high. We wanted to do what was best for our baby and my body, so we went home to wait. She died two days later, still nestled inside of my body, while I was asleep in bed. We never found out why.

The next day or two are sort of a blur. A sad, numb, unbelievable blur. I remember holding Madeline, staring down at her pretty little face. She really was so pretty. I sat there staring at her, just marveling at the tiny perfection of her fingers, her nose. She had high cheekbones like me. She had odd little elf ears like me too. She was undeniably mine, and I was so in love with her.

My husband and I spent a few hours with her before saying our goodbyes. There are no words that can express what that moment is like, the moment when you hand your child to the nurse and watch her walk out of the room with your baby knowing that she will not ever be bringing her back. It felt like most of me left with her. I was certain I was going to die. I was almost hoping I would. I just couldn't imagine what life was going to be like without her.

I had kept a journal throughout my pregnancy, and continued after Madeline's death. When I sat down to write about that day, one of the last lines I wrote was, "and that was it. then she was gone."

At the time it really felt that final. But since then I have come to realize that my relationship with Madeline did not die when she did, and my job as her mother did not end either. No, I do not nurse her, change her diapers, or wipe her runny nose- but I have spent the past three and a half years mothering her memory. It is, as heARTist Kara LC Jones calls it, a different kind of parenting. Continued parenting.

You are doing it right now. By coming here today you are actively parenting your child. You set this day aside for your child, made him or her your priority today. Maybe this is the only time that you do something like this, if so that is completely okay. I have very good friends who love and miss their children desperately, but who are simply not comfortable speaking openly about their loss or doing things publicly for their child. That doesn’t mean that they have forgotten their children, that their pain is not as great or that they are getting over it. Not at all. Every mother has her own style of parenting, and continued parenting is no different. With my living children I practice attachment parenting. I safely co-slept with them as infants, I nursed exclusively, I wore them in a wrap or carrier constantly. So it seems to make sense that I have been so very involved in mothering Madeline's memory. It was the kind of mom that I was wired to be to her, whether she was here in body or in spirit.

After I found out I was pregnant with Madeline, I immediately began rearranging my life for her. I cut back on my hours at work, I adjusted my diet, I started doing yoga more frequently. Our spare bedroom, which had been part storage part art studio, became the baby’s room. It filled up fast. She was the first grandchild on both sides of the family and everyone was so excited for her to arrive. I quit my job the week before my due date to be a stay at home mom. When I came home from the hospital without her, I literally had absolutely no purpose. Not only did I lose my daughter, I lost myself. I had already transformed into a mother, and what good is a mother without a child? I didn’t know what to do, so I just sat on my couch in the dark for days feeling lost and alone. Even once the deep depression had lifted, I still felt so lost and unsure. I didn’t know where I fit in. I couldn’t face my friends with children, especially the ones I had met while pregnant, it hurt too much to see them living the life I had dreamed up for Madeline and me. And I couldn’t just go back to hanging around my childless friends like nothing had ever happened. I was different. I had grown life inside of my body, given birth. I was changed. I was a mother.

So I did the only thing I knew how to do. I allowed myself to just be where I was. I cried freely. I screamed freely too. I spent days eating nothing but cheerios and string cheese. I turned off the ringer on my phone. I smashed clay pots in my driveway. I played African drums. I painted and wrote like a woman possessed. And I was honest with myself. Sometimes I was too honest for others to handle, too raw. At first I didn’t care if I made them uncomfortable, at times I even prided myself on it, but that was just part of my grieving process. Eventually, I found a way to integrate the new me into the world in a way where I didn’t have to hide Madeline, but I also didn’t have to brandish her like a weapon. Instead, I took the ugly, tangled mess of my grief and sculpted it into something beautiful and hopeful and kind. It grew very organically. My artwork, which I had never intended to share and had created only because I didn’t know what else to do with myself, found its way onto the walls of a gallery. The exhibit became a community outreach project when I opened it up to anyone who had created art in response to a primary loss. That opened doors for me to speak at hospitals, first about my experience and my artwork, and then about the needs of bereaved parents. Then came the founding of the Sweet Pea Project, which I created as my gift to Madeline on her 2nd birthday, and the publication of my book, Still: a collection of honest artwork and writings from the heart of a grieving mother. Before long, the photo album with the little green sweet peas on it- the one that I couldn’t stand to look at because it would never hold pictures of first smiles, first teeth, first steps- before long that album was full. There were newspaper clippings, photographs from the art exhibit, photographs from the garden her Daddy works so hard on. Photographs of the candle we lit for the Wave of Light, and from Share’s Walk to Remember. Photographs of her name written on beaches around the world. Photographs of her little brothers having picnics at her tree and construction paper birthday cards that they have made for her. That is how I know that I don’t have to worry about living without her, because she is still very much a part of my family and my life.

Moms tend to become friends with other moms of children around the same age as their own. The majority of my mom friends have two and a half year old boys right now, or little ones who just turned a year. Or children who would have been three, but have been gone for that many years instead. I am at a place now where I am comfortable with who I am, a mother to children both living and dead. If someone sees me with my two little boys and asks if I would like to try for a daughter, I usually reply that maybe I’ll have another child someday, but that I already have a daughter. Sometimes I just leave it as that, other times I explain that she died. But these conversations don’t flood me with anxiety the way they used to. Madeline is my daughter and I am proud of her. Proud and grateful. After all, she is the one who first made me a mother, and that is all I ever wanted to be. I am madly in love with each of my children, but ask anyone, there is always a special place for the first born in a mother’s heart.

Friday, September 17, 2010

Looking back: a journal entry from September 20, 2007

Sometimes I like to go back and read from the black journal that I wrote in every day during that first dark year without Madeline. It helps me to see how far I really have come, especially on days where I don't necessarily feel like I've made too much progress. I was doing that very thing earlier today, and I came across this journal entry that I wrote almost exactly three years ago. This entry did not get included in Still. but I think many parents would be able to relate to it, especially those who are anticipating the arrival of their rainbow babies.
So here it is...

September 20, 2007
Madeline's room is blue. The green is gone. The bears are gone. She is gone. I know it is a healthy step in the right direction, but then why does it feel so wrong? I felt good while I was working on it. Taking her stuff down was hard, but I did it gradually. Putting Ben's stuff up felt good. I felt like I was proving to myself that I believed in him. That I believe he will come home and live in this room, sleep in this crib, watch this mobile spin. I felt like I was accomplishing something, and it was encouraging. But then when I was done, I looked around the room and all of a sudden the realization of what I had just done came crashing down on me. I had just removed my daughter from her room, and given it to someone else. I felt like I had kicked her out. I laid down on the floor and cried and cried and cried. I felt guilty, I felt angry, I felt robbed. I want to have a room for Ben, I really do... but I want to have a room for Madeline, too. I want to NEED a room for Madeline. I WANT MADELINE. I really don't feel like I am being too greedy with my requests, all I want is to have BOTH of my children here with me. Why is that too much to ask?

Tuesday, September 14, 2010

Support Us While You Shop!

Every year you tell yourself that you are going to get your holiday shopping out of the way early this year. How often does that really end up happening? Well this year you have an added incentive to actually follow through with it because when you shop from Thirty-One's online catalog this fall, 15% of your total purchase will be donated to Sweet Pea Project! You know you are going to end up buying a lot of this stuff anyway, why not skip the hassle of rushing to the mall at the last minute and shop with ease from your computer- all the while supporting the vision of an important cause. So pick up some gifts, and maybe something for yourself while you're at it, and feel good about the fact that your purchase just helped offer comfort, support and gentle guidance to a newly bereaved mother.

Please feel free to grab the flier below and share it with friends, family and co-workers.

Use this direct link to view the online catalog for
Sweet Pea Project's Fundraiser through Thirty-One:
http://www.mythirtyone.com/shop/eventhome.aspx?eventId=E282157&from=MYEVENTS

This fundraiser was organized by Sweet Pea Project board member Simone L. Lee.
Please do not hesitate to contact her with any questions you may have at
Simone@sweetpeaproject.org.



Thank you for supporting the Sweet Pea Project, I hope you are having a beautiful day.
peace,
Stephanie Cole

Tuesday, August 24, 2010

Introducing Sweet Pea Project's Founding Board of Directors!

A note from the founder:

When the Sweet Pea Project first began it was just me. I collected blankets from friends and family members and drove to my local hospitals to donate them. I am amazed (and touched and grateful!) by how much the project has grown in less than two years time. I now gratefully accept donations from all over the world, and over 650 Sweet Pea Project blankets have been donated across the country. I have written a book which has been added to the donation program and the website has become a comforting and resourceful place for grieving parents to visit. To make sure the Sweet Pea Project continues to expand to meet the needs of bereaved parents, I have decided to ask Beth Gauthier, Nicole Spadea Jackson and Simone L. Lee to join me as members of the founding board of directors for the Sweet Pea Project. Each one is a dear friend and an incredible mother, and I know that together we will be able to do amazing things for our community. I feel as though I am watching a beautiful dream unfold before my eyes and I am so excited to see what we will be able to accomplish next. Please join me in welcoming Beth, Nicole and Simone and take a moment to visit www.sweetpeaproject.org/board to read a brief bio about each new member of the Sweet Pea Project team. Thank you for your continued support of my project, it means so very much to me.
peace,
Stephanie


--
Stephanie Paige Cole
Sweet Pea Project
www.sweetpeaproject.org

Monday, June 21, 2010

My book was released for sale today!

Available Now!!!

Still: a collection of honest artwork and writings from the heart of a grieving mother

by Stephanie Paige Cole, Founder of the Sweet Pea Project
with Foreword by nationally celebrated heARTist Kara LC Jones

Order your copy online at Amazon.com & Barnes&Noble.com
For more information visit www.sweetpeaproject.org/book

or contact the author at Stephanie@sweetpeaproject.org


When Stephanie Cole’s daughter died of unknown causes one week after her due date, it shook her to her very core and set her on a journey into the depths of grief. Stephanie faced her loss head-on, using creative expression as a tool to navigate her way through the intensity of her emotions, and allowing herself to grieve honestly and on her own terms. In her new book, Still: a collection of honest artwork and writings from the heart of a grieving mother, Stephanie invites us in for an intimate look at that first dark year without her daughter.

Stephanie has always had a love of writing, but never really considered becoming an author. Even as Still was being created, she didn’t feel as though she was writing a book. Stephanie explains, “I write as a way to release all of the overwhelming emotions of grief from my body. Before Still. was a book it was my journal, my canvas. It was a way for me to express the unspeakable.” Stephanie felt compelled to publish this very personal account in the hope that it will help break the silence of stillbirth. She wants to give other bereaved parents something they can relate to, to help them feel less alone in their despair. She also wants to offer a deeper understanding to those who haven’t experienced such a loss so that they will be better able to support those who have. There is such a stigma attached to stillbirth, nobody wants to talk about it, but this is a story that needs to be told. Nobody should have to suffer in silence. I want to begin a conversation that will ultimately allow other bereaved mothers to feel confident in speaking about the full truth of their motherhood.”

Stephanie finds strength and motivation in the courageous women that came before her, who refused to accept the status quo of “put this out of your mind, go home and try again.” She credits Sherokee Ilse, Dr. Joanne Cacciatore, Kara L.C. Jones, Laura Seftel and Elisabeth Kubler-Ross as inspirations, saying that through their work they “reached into the ocean of my loss and pulled me aboard their little lifeboat.”

Stephanie is honored to now be in a position to pull others on board as well, but first she had to overcome the fear of putting such a personal, emotional experience out into the world for everyone to read. “It is a little scary” says Stephanie, “but I have to believe that someone will be helped because of it, and that makes it all worthwhile.”

Stephanie was born in Queens, New York and later moved to Lancaster County, Pennsylvania with her family. Stephanie studied fine art in Massachusetts and remained there for a few years after graduation. She has since returned to Lancaster where she now lives with her husband and two young sons. Stephanie works a few hours a week at an art gallery, Mulberry Art Studios, but her main job title is stay at home mom.

Stephanie also spends a lot of time working with the Sweet Pea Project, which she founded in January 2009. The project collects and donates blankets to hospitals for stillborn babies and provides resources and support for bereaved families. Stephanie will be donating all of her profits from the sale of Still. to the Sweet Pea Project, where the money will be used to donate copies of the book to hospitals and bereavement organizations throughout the country. More information on the Sweet Pea Project can be found online at www.sweetpeaproject.org.


Reviews of Still.

" Still. shows us how look at grief and our different kind of parenting even when we feel overwhelmed by the chaos. Stephanie models for us how to journal, paint, sculpt, shatter, glue together, take a poetic view. All of these are tools we can use to look askew and try to get a handle on our experience when looking straight on is just too much. Stephanie does not prescribe one single way. She does not claim to have the fix or the exact path we must all adhere to. But rather she shares all the tools she used. She gives you the choice to try what feels right to you. She models one way and leaves all the other branches off the path open for you to try as you need and want."

Kara L.C. Jones, Grief & Creativity Coach at MotherHenna.com

“Still is the poignant exposition of the reality that besets more than 25,000 pregnant families each year in the US. Stephanie Cole’s portrayal of the year following Madeline’s death is vivid and stark, and speaks to the disbelief and emptiness of the 50% of parents who never discover why their unborn baby died. Stephanie’s year deprived of an infant is illustrative of the challenge families and those who care for them face when experiencing the loss of an unborn child. Each child is a special chapter in every family’s life, even if that chapter is but a few, heartbreaking pages of limited memories. Still is important reading for those who experience pregnancy loss. Perhaps it is more important reading for those who have not shared the experience but wish to understand.”

Dr. John J. Botti, Maternal-Fetal Medicine

“Stephanie’s honesty and candor are refreshing in a society that wants everything, even mourning, wrapped up in some sort of neat package. She allows us to walk her path with her, acknowledging that everyone’s journey will be unique and that we will eventually accept what will become our new normal."

Beth Gauthier, Mother to Mark (stillborn, Feb 2007)

“Stephanie writes from a place of honesty and raw emotion. Throughout her writing she weaves the dreams she and her husband had for their precious daughter Madeline. Her words help the reader understand the depth of pain felt by parents who experience the death of a much loved and hoped for baby. A great read for any professional who wants to gain a better understanding of the emotions and feelings of a grieving parent.”

Chaplain Carolanne Hauck, Bereavement Coordinator



Tuesday, May 25, 2010

Sweet Pea Project Blankets

After my daughter was born she was gently bathed, wrapped in a hospital blanket and handed to me. I held her for hours, staring at her beautiful face and holding her tiny fingers. Two days later I went home with a memory box that contained nothing worth remembering. Nothing in it had belonged to her or touched her. The one thing that could have been in that box that would have been of some small comfort to me was the blanket that had swaddled her perfect little body during the short time that we were together, and it wasn't there. They hadn't offered it to me and I didn't think to ask for it.

The Sweet Pea Project grew out of that regret. For Madeline's 2nd birthday I asked friends and family to donate blankets for me to bring to the hospital where Madeline was born. My hope was that I could collect one year's supply. I received far more than I could have dreamed of, and the Sweet Pea Project was born. Thanks to the generous support of individuals and businesses, I have collected over 625 blankets since then. 18 hospitals in 8 different states now hand out Sweet Pea Project blankets to their bereaved parents, and we are adding more all the time.


My dream is that every parent who loses a child before, during or shortly after birth
will be given a special blanket to snuggle their baby in and remember their baby by. And I'm hoping you will help me. Talk to the hospitals and birthing centers in your area and see what their needs are. If they would like Sweet Pea Project blankets, let me know and I will ship a box to them. And if you would like to take it one step further and host a blanket drive in your area, I would be happy to help. Together we can bring a little comfort to the parents of those precious children who are so desperately loved and missed.

For more information please visit the Request Our Help page at www.sweetpeaproject.org/request

peace,
Stephanie

Saturday, May 8, 2010

Mother's Day of Peace

Well, there is no escaping it. Tomorrow is Mother's Day.


For those of you who lost your only child or who are facing their first Mother's Day since their child's death, tomorrow will no doubt be a difficult day. The memory of my first Mother's Day without Madeline is still heavy in my heart. I wanted to just ignore it, but I was constantly ambushed by junkmail advertisements, displays in stores, and commercials on the radio and TV. I found myself questioning if I really was a mother, if I even deserved this day at all. Of course I knew in my heart that I was a mother, but I felt like society considered me disqualified since I had no little ones to scribble "I love you" on construction paper or make me a messy breakfast in bed.


If I only had known then what I know now. You see, since then I have met Kara Jones of KotaPress and MotherHenna, and she gave me a little history lesson. Mother's Day is not just a meaningless Hallmark Holiday. It began as a peace protest in 1870 by Julia Ward Howe, who was sick of seeing mothers lose their sons to war. When I read the line in Howe's proclamation that says, "Let them meet first, as women, to bewail and commemorate the dead," I couldn't help but feel empowered. I remembered how I felt that first Mother's Day, when everyone else was off celebrating while I stayed in bed to cry alone and then later when my husband and I hiked through the woods to a little meadow where we planted five saplings for Madeline, thanking her for making me a mother. I had felt like such an outcast at the time, but now I look back and am struck by the fact that I was the one celebrating the true nature of Mother's Day. It is not about going out to brunch, it is about honoring the entire experience of motherhood. Kara puts it perfectly when she says, "I'll celebrate with you as long as you will first mourn with me. It is the combination of the two that lends itself to the true meaning of Mothers Day!"


To read Kara's entire article on this topic, including the speech Julia Ward Howe gave in Boston in 1870, please visit the following page: http://www.kotapress.com/section_articles/holidays/motherFatherDays/jones_realMeaning.htm.


Wishing you all a gentle Mother's Day of Peace tomorrow in honor of every mother of every child, living or dead.



peace,


Madeline's Mommy, Stephanie Cole

Thursday, May 6, 2010

Pennsylvania's MISSing Angel's Bill

Pennsylvania, which sadly holds the record for most failed attempts to pass the MISSing Angels Bill, is finally moving forward with SB620, and things are looking promising. SB620 passed Senate Appropriations Committee unanimously on May 4th and will be voted on by the Full Senate during the week of May 24th.

For those of you who aren't familiar with the MISSing Angel's Bill, this important piece of legislation allows states to issue a Certificate of Birth Resulting in Stillbirth to parents of stillborn babies. As it stands right now in Pennsylvania (and 22 other states, as well) parents of stillborn babies are offered only a Death Certificate. The names of the children are not kept in medical files and they are not counted in infant mortality records. This is not only inconsiderate, it is irresponsible.

After her son Max was stillborn on December 28th, 2009, Nicole Spadea Jackson joined the fight to pass this legislation in Pennsylvania. She has been interviewed for newspaper articles and has appeared on several television news programs. (Links to each of these interviews can be found on the Sweet Pea Project's Legislation page.)


In an effort to gain national attention for this issue, Nicole is in the process of putting together a small book of pictures and brief stories for the children who deserve the recognition a Certificate of Birth Resulting in Stillbirth would provide. I was honored to provide a Foreword for that book, and I thought I would share it with you here.

*****

This book is dedicated to the life of each and every one of the beautiful little babies that are stillborn each year. In this country, there are approximately 26,000. These are not pregnancies that didn't work out. These are deeply loved and desperately missed babies who died before taking their first breath, but who were born just the same. Their mothers labored for hours or underwent surgery to bring their perfect little bodies into the world. Just like every other newborn, these babies were bathed and swaddled, cradled and kissed, sung to and cried over. The only difference is that our tears were not tears of joy.

On top of the already overwhelming pain of having to say hello and goodbye all in one breath, we were told that only 27 states offer a Certificate of Birth Resulting in Stillbirth, and ours (PA) is not one of them. At least not yet.

The mothers asking for this come from all walks of life, each with their own values, morals and beliefs. What matters is what they have in common, they are all mothers. Mothers who have suffered the unspeakable loss of a beautiful daughter or son. All we ask is for our children to be recognized as having been born, and included in infant mortality records. With 1 in 115 babies dying of stillbirth, it seems irresponsible that they are not counted. It is our hope that more accurate records will lead to better research, and maybe that will save other mothers from suffering through the heartbreak of losing a child.


Our children may have come into this world in silence, but we as mothers simply cannot stay silent any longer and allow the truth of our motherhood to be denied. Max deserves a birth certificate. Madeline deserves a birth certificate. Each baby in this book and every single one of the 26,000 stillborn babies born in this country each year deserve a birth certificate. Please take a moment to page through this book, read our stories, and look at the pictures of our precious children. If, after doing so, you agree that these little ones count, then please join me in raising awareness of the need for an important piece of legislation, the MISSing Angels Bill.

Thank you to Nicole Spadea Jackson, the amazing, dedicated mother of Thomas Maximus Jackson, for putting this book together and breathing new life into this movement.

And thank you to YOU for taking the time to listen to a story that so few people are willing to hear.


Stephanie Paige Cole, Madeline's Mom

*****


If you aren't already involved, than I encourage you to be a part of this movement. You can find links to informative pages from the MISS Foundation, the PA CBRS page and a Petition at the Sweet Pea Project's Legislation page. We need this bill to pass in all 50 states before we will be able to see widespread change in the way stillbirths are handled and recorded in the medical community. Thank you for your support.

peace,

Stephanie